TY - JOUR
T1 - Understanding Hong Kong Chinese Families’ Experiences of an Autism/ASD Diagnosis
AU - Tait, Kathleen
AU - Fung, Francis
AU - Hu, Aihua
AU - Sweller, Naomi
AU - Wang, Wei
N1 - Publisher Copyright:
© 2015, Springer Science+Business Media New York.
PY - 2016/4
Y1 - 2016/4
N2 - Little is known about the experience of Chinese parents of children diagnosed with autism spectrum disorders (ASD) living in the Hong Kong Special Administrative Region. Seventy-five parents of children (aged 6 months–18 years) with ASD diagnoses completed the Family Quality of Life Scale. Forty-five parents from the original surveyed cohort, also participated in semi-structured interviews. Parents’ perceptions of their child’s disability were influenced both by their cultural background and by the limited and expensive, pre- and post-diagnostic services available. Longer waiting times to diagnosis were associated with lower emotional well-being and perceived disability-related support. Clinicians are encouraged to become part of the support network for parents of children with ASD, to help parents to adjust to caring for their child.
AB - Little is known about the experience of Chinese parents of children diagnosed with autism spectrum disorders (ASD) living in the Hong Kong Special Administrative Region. Seventy-five parents of children (aged 6 months–18 years) with ASD diagnoses completed the Family Quality of Life Scale. Forty-five parents from the original surveyed cohort, also participated in semi-structured interviews. Parents’ perceptions of their child’s disability were influenced both by their cultural background and by the limited and expensive, pre- and post-diagnostic services available. Longer waiting times to diagnosis were associated with lower emotional well-being and perceived disability-related support. Clinicians are encouraged to become part of the support network for parents of children with ASD, to help parents to adjust to caring for their child.
KW - Parental information
KW - Diagnosis
KW - Autism spectrum disorder
KW - Hong Kong SAR
UR - https://www.scopus.com/pages/publications/84961210852
UR - https://link.springer.com/article/10.1007/s10803-015-2650-z
U2 - 10.1007/s10803-015-2650-z
DO - 10.1007/s10803-015-2650-z
M3 - Journal article
C2 - 26572657
AN - SCOPUS:84961210852
SN - 0162-3257
VL - 46
SP - 1164
EP - 1183
JO - Journal of Autism and Developmental Disorders
JF - Journal of Autism and Developmental Disorders
IS - 4
ER -
