Strategies and factors to enhance active participation of family caregivers of people with dementia in psychoeducation: A scoping review

Hoi Man Chan, Ken Hok Man Ho, Rebecca Cho Kwan Pang, Helen Yue Lai Chan*

*Corresponding author for this work

Research output: Contribution to journalJournal articlepeer-review

2 Citations (Scopus)

Abstract

Psychoeducation with an active participation component is effective in facilitating family caregivers of people living with dementia to learn about the disease and gain relevant caregiving skills. However, research into the best strategies to promote active participation has received little attention, and the factors hindering active participation are also unknown. Therefore, the nine-stage framework of the Joanna Briggs Institute methodology for scoping reviews was adopted to map and identify information about the active participation of family caregivers of people living with dementia in psychoeducation. The search criteria focused on identifying primary research studies and grey literature relevant to psychoeducation with active participation that had the family caregivers of community dwelling people living with dementia as the target population. Two reviewers independently screened and selected items from the literature. Content analysis was conducted to thematically synthesise strategies mentioned in 29 articles published from 2011 and 2021. Content analysis revealed six strategies that promoted active participation: (1) the involvement of interventionist and qualifications; (2) the teaching and learning methods used to conduct psychoeducation with active participation; (3) tailoring the contents and formats to the experiences, preferences, and resources of the caregivers; (4) collaborating with caregivers; (5) facilitating sharing and support between peers; and (6) providing experiential learning opportunities. Two factors hindering active caregiver participation were negative caregiver emotions and cultural taboos. This review offers ideas for evidence-based practices that can be used by health and social care providers when planning psychoeducation with active participation for the family caregivers of people living with dementia.

Original languageEnglish
Pages (from-to)272-291
Number of pages20
JournalDementia
Volume23
Issue number2
Early online date13 Dec 2023
DOIs
Publication statusPublished - Feb 2024

Scopus Subject Areas

  • Sociology and Political Science
  • General Social Sciences

User-Defined Keywords

  • active participation
  • Dementia
  • family caregivers
  • psychoeducation
  • psychosocial intervention
  • scoping review

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