Dignified Palliative Long-Term Care: An Interpretive Systemic Framework of End-of-Life Integrated Care Pathway for Terminally Ill Chinese Older Adults

Andy Hau Yan Ho; James K. H. Luk; Felix H. W. Chan; Wing Chun Ng; Catherine K. K. Kwok; Joseph H. L. Yuen; Michelle Y. J. Tam; Wing Shan Kan; Cecilia L. W. Chan

doi:10.1177/1049909114565789

Dignified Palliative Long-Term Care: An Interpretive Systemic Framework of End-of-Life Integrated Care Pathway for Terminally Ill Chinese Older Adults

Andy Hau Yan Ho^*, James K. H. Luk, Felix H. W. Chan, Wing Chun Ng, Catherine K. K. Kwok, Joseph H. L. Yuen, Michelle Y. J. Tam, Wing Shan Kan, Cecilia L. W. Chan

^*Corresponding author for this work

Academy of Wellness and Human Development

Research output: Contribution to journal › Journal article › peer-review

19 Citations (Scopus)

Abstract

Purpose: To critically examine the system dynamics necessary for successfully implementing a novel end-of-life integrated care pathway (EoL-ICP) program in promoting dignity and quality of life among terminally-ill Chinese nursing home residents.

Methods: Thirty stakeholders were recruited to participate in 4 interpretive-systemic focus groups.

Results: Framework analysis revealed 10 themes, organized into 3 categories, namely, (1) Regulatory Empowerment (interdisciplinary teamwork, resource allocation, culture building, collaborative policy making), (2) Family-Centered Care (continuity of care, family care conference, partnership in care), and (3) Collective Compassion (devotion in care, empathic understanding, compassionate actions).

Conclusions: These findings highlight the importance of organizational structure, social discourse, and shared meaning in the provision of EoL-ICP in Chinese societies, underscoring the significant triangulation between political, cultural, and spiritual contexts embodied in the experience of dignity.

Original language	English
Pages (from-to)	439-447
Number of pages	9
Journal	American Journal of Hospice and Palliative Medicine
Volume	33
Issue number	5
Early online date	14 Jan 2015
DOIs	https://doi.org/10.1177/1049909114565789
Publication status	Published - Jun 2016

User-Defined Keywords

death and dying
dignity
long-term care
transitional models
qualitative methods

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Ho, A. H. Y., Luk, J. K. H., Chan, F. H. W., Ng, W. C., Kwok, C. K. K., Yuen, J. H. L., Tam, M. Y. J., Kan, W. S., & Chan, C. L. W. (2016). Dignified Palliative Long-Term Care: An Interpretive Systemic Framework of End-of-Life Integrated Care Pathway for Terminally Ill Chinese Older Adults. American Journal of Hospice and Palliative Medicine, 33(5), 439-447. https://doi.org/10.1177/1049909114565789

@article{678e14c2c21b484faa84628b32dfac9e,

title = "Dignified Palliative Long-Term Care: An Interpretive Systemic Framework of End-of-Life Integrated Care Pathway for Terminally Ill Chinese Older Adults",

abstract = "Purpose: To critically examine the system dynamics necessary for successfully implementing a novel end-of-life integrated care pathway (EoL-ICP) program in promoting dignity and quality of life among terminally-ill Chinese nursing home residents. Methods: Thirty stakeholders were recruited to participate in 4 interpretive-systemic focus groups. Results: Framework analysis revealed 10 themes, organized into 3 categories, namely, (1) Regulatory Empowerment (interdisciplinary teamwork, resource allocation, culture building, collaborative policy making), (2) Family-Centered Care (continuity of care, family care conference, partnership in care), and (3) Collective Compassion (devotion in care, empathic understanding, compassionate actions). Conclusions: These findings highlight the importance of organizational structure, social discourse, and shared meaning in the provision of EoL-ICP in Chinese societies, underscoring the significant triangulation between political, cultural, and spiritual contexts embodied in the experience of dignity. ",

keywords = "death and dying, dignity, long-term care, transitional models, qualitative methods",

author = "Ho, {Andy Hau Yan} and Luk, {James K. H.} and Chan, {Felix H. W.} and Ng, {Wing Chun} and Kwok, {Catherine K. K.} and Yuen, {Joseph H. L.} and Tam, {Michelle Y. J.} and Kan, {Wing Shan} and Chan, {Cecilia L. W.}",

year = "2016",

month = jun,

doi = "10.1177/1049909114565789",

language = "English",

volume = "33",

pages = "439--447",

journal = "American Journal of Hospice and Palliative Medicine",

issn = "1049-9091",

publisher = "SAGE Publications Inc.",

number = "5",

}

Ho, AHY, Luk, JKH, Chan, FHW, Ng, WC, Kwok, CKK, Yuen, JHL, Tam, MYJ, Kan, WS & Chan, CLW 2016, 'Dignified Palliative Long-Term Care: An Interpretive Systemic Framework of End-of-Life Integrated Care Pathway for Terminally Ill Chinese Older Adults', American Journal of Hospice and Palliative Medicine, vol. 33, no. 5, pp. 439-447. https://doi.org/10.1177/1049909114565789

Dignified Palliative Long-Term Care: An Interpretive Systemic Framework of End-of-Life Integrated Care Pathway for Terminally Ill Chinese Older Adults. / Ho, Andy Hau Yan; Luk, James K. H.; Chan, Felix H. W. et al.
In: American Journal of Hospice and Palliative Medicine, Vol. 33, No. 5, 06.2016, p. 439-447.

Research output: Contribution to journal › Journal article › peer-review

TY - JOUR

T1 - Dignified Palliative Long-Term Care

T2 - An Interpretive Systemic Framework of End-of-Life Integrated Care Pathway for Terminally Ill Chinese Older Adults

AU - Ho, Andy Hau Yan

AU - Luk, James K. H.

AU - Chan, Felix H. W.

AU - Ng, Wing Chun

AU - Kwok, Catherine K. K.

AU - Yuen, Joseph H. L.

AU - Tam, Michelle Y. J.

AU - Kan, Wing Shan

AU - Chan, Cecilia L. W.

PY - 2016/6

Y1 - 2016/6

N2 - Purpose: To critically examine the system dynamics necessary for successfully implementing a novel end-of-life integrated care pathway (EoL-ICP) program in promoting dignity and quality of life among terminally-ill Chinese nursing home residents. Methods: Thirty stakeholders were recruited to participate in 4 interpretive-systemic focus groups. Results: Framework analysis revealed 10 themes, organized into 3 categories, namely, (1) Regulatory Empowerment (interdisciplinary teamwork, resource allocation, culture building, collaborative policy making), (2) Family-Centered Care (continuity of care, family care conference, partnership in care), and (3) Collective Compassion (devotion in care, empathic understanding, compassionate actions). Conclusions: These findings highlight the importance of organizational structure, social discourse, and shared meaning in the provision of EoL-ICP in Chinese societies, underscoring the significant triangulation between political, cultural, and spiritual contexts embodied in the experience of dignity.

AB - Purpose: To critically examine the system dynamics necessary for successfully implementing a novel end-of-life integrated care pathway (EoL-ICP) program in promoting dignity and quality of life among terminally-ill Chinese nursing home residents. Methods: Thirty stakeholders were recruited to participate in 4 interpretive-systemic focus groups. Results: Framework analysis revealed 10 themes, organized into 3 categories, namely, (1) Regulatory Empowerment (interdisciplinary teamwork, resource allocation, culture building, collaborative policy making), (2) Family-Centered Care (continuity of care, family care conference, partnership in care), and (3) Collective Compassion (devotion in care, empathic understanding, compassionate actions). Conclusions: These findings highlight the importance of organizational structure, social discourse, and shared meaning in the provision of EoL-ICP in Chinese societies, underscoring the significant triangulation between political, cultural, and spiritual contexts embodied in the experience of dignity.

KW - death and dying

KW - dignity

KW - long-term care

KW - transitional models

KW - qualitative methods

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DO - 10.1177/1049909114565789

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SN - 1049-9091

VL - 33

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EP - 447

JO - American Journal of Hospice and Palliative Medicine

JF - American Journal of Hospice and Palliative Medicine

IS - 5

ER -

Dignified Palliative Long-Term Care: An Interpretive Systemic Framework of End-of-Life Integrated Care Pathway for Terminally Ill Chinese Older Adults

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