Dignified Palliative Long-Term Care: An Interpretive Systemic Framework of End-of-Life Integrated Care Pathway for Terminally Ill Chinese Older Adults

Andy Hau Yan Ho*, James K. H. Luk, Felix H. W. Chan, Wing Chun Ng, Catherine K. K. Kwok, Joseph H. L. Yuen, Michelle Y. J. Tam, Wing Shan Kan, Cecilia L. W. Chan

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

Abstract

Purpose: To critically examine the system dynamics necessary for successfully implementing a novel end-of-life integrated care pathway (EoL-ICP) program in promoting dignity and quality of life among terminally-ill Chinese nursing home residents.

Methods: Thirty stakeholders were recruited to participate in 4 interpretive-systemic focus groups.

Results: Framework analysis revealed 10 themes, organized into 3 categories, namely, (1) Regulatory Empowerment (interdisciplinary teamwork, resource allocation, culture building, collaborative policy making), (2) Family-Centered Care (continuity of care, family care conference, partnership in care), and (3) Collective Compassion (devotion in care, empathic understanding, compassionate actions).

Conclusions: These findings highlight the importance of organizational structure, social discourse, and shared meaning in the provision of EoL-ICP in Chinese societies, underscoring the significant triangulation between political, cultural, and spiritual contexts embodied in the experience of dignity.
Original languageEnglish
Pages (from-to)439-447
Number of pages9
JournalAmerican Journal of Hospice and Palliative Medicine
Volume33
Issue number5
Early online date14 Jan 2015
DOIs
Publication statusPublished - Jun 2016

User-Defined Keywords

  • death and dying
  • dignity
  • long-term care
  • transitional models
  • qualitative methods

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